Looking for a link!
Mike also had genetic testing done.
They were looking for a linking gene which causes genetic cardiomyopathy. The TTN gene provides instructions for making a very large protein called Titin, this protein plays an important role in muscles the body uses for movement and the heart muscle. This gene is one of the main causes of heart failure and heart transplant.
Mike was positive, this is our linking gene for the family. Now the boys needed to be tested, they both had a 50/50 shot...and both boys are positive as well.
Blake and Easton now get yearly testing done at the Helen DeVos Children's Hospital Congenital Heart Center. Both have passed with flying colors in 2021 and 2022. They go back each year to have Echos and EKGs completed yearly. They currently do not have Cardiomyopathy, but do have the gene for it.
Time will tell on what happens with both their hearts, each heart has it's own story to tell...and right now, the story is good!
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