Skip to main content

1 Year On The List

 


One year....One year of doctor appointments, blood draws, heart caths, stress tests, CT scans, MRI scans....and one year of lots of adventures. 

I think it is safe to say that we used this last year to just....live. We went to Florida to see Nana and Rick, a Disney cruise to Tortola and St. Thomas, up to Great Gram Grams across the bridge, Spring Hill, Leland, Crystal Mountain, Alpena (a few times), the beach, and lots of adventures around Michigan with friends and family. Mike and I celebrated our 15 year anniversary by crusing to the bahamas in early November...a week just the two of us. By the end of summer the boys were asking us to just stay home LOL! 








As the year went on Mike grew stronger and started to feel good, back to his normal self. We recieved cards, messages, texts, phone calls, and lots of prayer. With each heart cath we recieved good news that Mike's heart is staying at his new normal and got better from when he was in heart failure last fall (2022). Mike's last heart cath was November 27th and as we talked with the doctor they told us his case would be reviewed at the next heart meeting as his one year on the list was coming up. 

December 11th marked one year on the list...and on December 11th the heart council met and decided that Mike is a little to healthy to be on the list. December 12th we got the phone call that Mike is no longer on the heart transplant list. The two of us put on some ugly Christmas sweaters and celebrated with a night out...soaking in the news all to ourselves...and the bartender who gave us free shots! 



We are over joyed and beyond blessed by God's healing hand over Mike's hearts. This isn't the end to his journey, his heart is still weak; beating fast, little higher blood pressure, and an ejection fraction of 19. But for now he doesn't need a heart. In December Blake and Easton had their heart checkups and they have beautiful healthy hearts, no sign of cardiomyophthy. 

What does 2024 have in store for us? What will one more year bring? I have no idea...but with God in our hearts and on our lips I know that anything is possible. 



Comments

Post a Comment

Popular posts from this blog

3 Months with Christmas Around the Corner

 This month we celebrate Jesus' birth and Mike's 3 month anniversary with a new heart! A wonderful month to celebrate in! We started off December trying to cram in every holiday activity that we could. Hot cocoa, cookie baking, craft shows, Christkindl Market Downtown, and visiting with loved ones.  Mike had his 3 month (Dec 10th) check up, left heart Cath, and biopsy. It was a long day at the hospital as left heart caths take more time. Nothing some raspberry sherbet and peanut butter crackers couldn't fix though. On the 11th we each (Mike and I) received some news. Mike was at a level 2 rejection and my position with Learning Care Group was eliminated. It was a tough day for the Neubert household. Mike started on a higher dose of steroids and an extra 3 day boost of steroids to help kick the rejection. He was also scheduled for another biopsy on December 23rd. After 15.5 years with AppleTree/LCG I am transitioning into a new era in my life...what that is is still to be de...
Post a Comment
Read more

6 Months...180 Days...and so Many Moments Together

 2025 is going by so fast! I can hardly believe that six months have past since Mike got his heart transplant. March 7th marks half a year through this journey, and oh what a journey it has been!  Over the last couple months we have celebrated Blake's 11th birthday, my 38th birthday, and a few more birthday parties on top of those. Blake crossed over into Boy Scouts and went on his first campout with his new troop. Easton and Blake wrestled in a few tournaments where they earned some new medals, they have Regionals coming up this weekend. The boys are doing great in school and growing so fast, Blake is catching up to us all and already 5'4". While I am writing this blog tonight I had to put them back to bed three times...they are getting creative with their procrastination techniques. In the not so far future I can only imagine that they won't be coming back out to ask silly questions and want to be tucked back into bed. These times are so precious and fly by so fast. ...
Post a Comment
Read more

One Giant Leap of Faith into 2025

 It's amazing to think that one year ago we were celebrating Mike getting off the Heart Transplant List, and now here in 2025 he has a new heart!  2024 was a rolling rollercoster of emotions, fears, celebrations, and the deep unknown. It started off with celebration packed with the never ending question of when. When would he get worse again, when would his heart fail, when when when. The looming question that seated itself in the back of my mind. The question that popped into my mind when I was driving alone, when Mike didn't answer my phone calls, when he was alone with the boys; it wasn't an overwhelming thought, just a thought that would spring up and make itself at home in the corner of my mind. Mike would say that I worry for the both of us, which is absolutely true...someone has to do it! I worry and then prepare for those worries. I think all that worrying and preparing really helped us get through the worst moments of 2024...but then again, you can never be prepare...
Post a Comment
Read more