Skip to main content

First Day of School and a New Heart

 Starting a new school year can be daunting in itself, but starting when your dad is about to get a new heart can be really hard. 

This year Blake is in 5th grade and Easton is in 3rd. We went to their classroom open house to meet the teachers, find their desks, and test out their lockers. We took pictures and talked to dad afterwards but it just wasn't the same. Blake said he is 'dad sick', like home sick but just missing dad instead. Mike is an amazing dad and is all in on their lives, events, and school. We can just feel the difference this year. 


With all that is going on the boys school has been amazing in helping us and Blake and Easton walk through this journey. The principal, Blake's teacher, Easton's teacher and speech teacher, and the school counslor sat down with me before school started to walk through Mike's heart journey and how the boys are handling it. We are so lucky to have a school with a principal and team that cares so deeply for the well being of our boys and their success in this weird school year. 

Happy 1st Day of 5th Grade and 3rd Grade! 


On to the main reason we are here...Mike's Heart! 

Mike's heart isn't doing so great. The left side is being supported by the Impella Pump and now the right side is going down hill. They are keeping a close eye on his heart and have hinted that by the end of the week beginning of next week he may need an Impella Pump to support the right side of his heart as well. We knew it could always get worse and we are reaching that stage. With both sides of his heart being supported by Impella Pumps that would move Mike up the list to a level 1. It would be amazing if we got a heart before he needed to go into surgery for the right side Impella Pump. The least amount of surgeries and time recovering would be better. 

All in all Mike is in good spirits and doing well otherwise. He goes for walks daily and walks on a tredmill for 1 mile each day. His doctors and nurses are pretty impressed with his mobility, strength, and drive to stay well while he waits. He has lost a lot of weight and muscle but is in good shape for a heart transplant and recovery. 

The boys have been begging me for weeks now to go to Frosty Boy. We pass it on our way to and from the hospital. We stopped last night and enjoyed some ice cream before school started the next day. Ice cream has a way of pausing the nerves and releasing the anxiety of getting a new heart. A great way to end the summer and relax for just a moment. 



Comments

Popular posts from this blog

3 Months with Christmas Around the Corner

 This month we celebrate Jesus' birth and Mike's 3 month anniversary with a new heart! A wonderful month to celebrate in! We started off December trying to cram in every holiday activity that we could. Hot cocoa, cookie baking, craft shows, Christkindl Market Downtown, and visiting with loved ones.  Mike had his 3 month (Dec 10th) check up, left heart Cath, and biopsy. It was a long day at the hospital as left heart caths take more time. Nothing some raspberry sherbet and peanut butter crackers couldn't fix though. On the 11th we each (Mike and I) received some news. Mike was at a level 2 rejection and my position with Learning Care Group was eliminated. It was a tough day for the Neubert household. Mike started on a higher dose of steroids and an extra 3 day boost of steroids to help kick the rejection. He was also scheduled for another biopsy on December 23rd. After 15.5 years with AppleTree/LCG I am transitioning into a new era in my life...what that is is still to be de...

Cabinet Doors & Dirty Socks

 From New Hearts to Halloween to Thanksgiving to Christmas...Happy Holidays!  When Mike and I were first married I remember his Aunt Sandy asking me what I found the most irritating about living with my new husband. I told her it was his dirty socks that he would leave all over the apartment but mostly slightly shoved into the couch cushions. She then proceeded to tell me about her pet peeve with Uncle Ted. In the morning he would get ready and start to make breakfast and a coffee. He would leave every cabinet door and drawer open as he went through the kitchen. She would be so mad as she went behind him and closed every opened door and drawer. One day though, Ted went to a conference and was out of town for a bit. As Sandy got ready and went into the kitchen she noticed that the cabinet doors and drawers were all closed...Ted wasn't home and there was no sign of him. She told me to cherish the cabinet doors & dirty socks. From then on when I found the dirty socks shoved i...

6 Months...180 Days...and so Many Moments Together

 2025 is going by so fast! I can hardly believe that six months have past since Mike got his heart transplant. March 7th marks half a year through this journey, and oh what a journey it has been!  Over the last couple months we have celebrated Blake's 11th birthday, my 38th birthday, and a few more birthday parties on top of those. Blake crossed over into Boy Scouts and went on his first campout with his new troop. Easton and Blake wrestled in a few tournaments where they earned some new medals, they have Regionals coming up this weekend. The boys are doing great in school and growing so fast, Blake is catching up to us all and already 5'4". While I am writing this blog tonight I had to put them back to bed three times...they are getting creative with their procrastination techniques. In the not so far future I can only imagine that they won't be coming back out to ask silly questions and want to be tucked back into bed. These times are so precious and fly by so fast. ...